Abstract. Amyotrophic lateral sclerosis (ALS) sits at an uncomfortable junction in the governance of health and long-term care. It is rare enough to escape the institutional attention reserved for high-prevalence conditions, yet complex enough that generic disability or palliative frameworks struggle to cover its full care pathway. This article argues that ALS governance is best characterised as…

Abstract. The present article has a twofold objective. First, it proposes the Long-Term Care Coordination Index (LTC-CoIn), an analytical tool designed to systematically evaluate the scope of intergovernmental and intersectoral coordination mechanisms in long-term care (LTC) systems, applicable to any territorially complex country. Second, it applies this index to analyse the governance of the…

Abstract. A growing body of research links public service provision to political geographies. Yet an increasing share of services in Western countries is delivered by private companies. This article argues that the political implications of service deprivation extend beyond state-provided services for two reasons: first, because private services support communities through socioeconomic channels…

About this book. This book critically analyses the ongoing, often silent, expansion of genomics throughout society. Genomics has undeniably become an integral part of everyday life for many, albeit in ever-stratified ways, and this routinization process has come with interesting and often unpredicted consequences, interacting with national cultures, regulations, healthcare systems, patients,…

Resumen. Las pruebas genéticas embrionarias comprenden dos tipos de examen muy distintos. El Diagnóstico Genético Preimplantacional (PGD/PGT-M y PGT-SR) se utiliza en personas que padecen un trastorno genético conocido con el fin de evitar la transmisión de esta anomalía a su descendencia, mientras que el Cribado Genético Preimplantacional (PGS/PGT-A) se ofrece a personas “sanas” para aumentar…

Resumen. Este artículo analiza cómo la ciudadanía prioriza distintas motivaciones para cumplir con las medidas anti‑COVID. Utilizando un experimento conjunto (conjoint experiment en inglés) incluido en una encuesta en línea representativa de la población española (N = 3291), examinamos las preferencias de las personas al serles propuesto el ejercicio de decidir si entrar en un bar. El trabajo de…

Abstract.

Objectives: To  synthesize  and  contextualize  a  variety  of  approaches  in  the  scientific  literature  for  identifying  researchers  and  characterizing  and  measuring  their scholarly  activities  and  research  outputs,  providing  elements  that  guide  the  construction  of  researcher  profiles  that  offer  a  global  and contextualized …

Abstract. What are the determinants of individual uptake of vaccination? Using original data from a survey fielded in September 2021 in Germany and the United Kingdom, this study looks at the impact of three factors on individual vaccination during the COVID-19 pandemic. In a first study using observational data, we look at individual trust in institutions and political ideology. In a second…

Abstract. Gender inequalities in science are widely documented, yet their persistence is often examined through isolated dimensions such as productivity, funding or publishing practices. This study provides an integrated analysis of how funding patterns, team structures and Open Access practices are associated with women’s participation in scientific production in Spain. Using large-scale…

Abstract. This study investigates the perceptions of Brazilian researchers in agronomy regarding the order of authorship and the role of the corresponding author in scientific publications utilizing a survey of 380 responses. Key findings reveal that most researchers see the first author as the primary executor of the research, and the last author as the leader. The study also highlights a…